Mehar Kang

LIVING IN THE SHADOW: Caregiver Burden in Huntington’s disease

Introduction

Living in the shadow: caregiver burden in huntington’s disease. Explore the significant burden faced by caregivers of Huntington's disease patients. Understand the impact on their well-being & the vital need for advocacy and resources.

Abstract

Caregivers for patients with chronic illnesses play a pivotal role in the provision and maintenance of care, but this often occurs at the expense of their quality of life and well-being. Fostering patient safety and a higher quality of care requires advocacy and mobilization of resources to cope with the growing demands of caregiving, in addition to involving family caregivers as collaborative partners in the plan of a dignified, caring process.

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